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CAL
The “Compassionate Allowances” (CAL) program finds illnesses and other medical problems promptly i.e., here problems by definition means that qualify a person for disability benefits under Social Security. For those with the most severe disabilities, the CAL initiative helps individuals shorten the time it takes to determine their disability.
The main problems/conditions are “adult brain disorders, several types of cancer, and several uncommon childhood illnesses/disorders.” Candidates who are most likely to be approved are expedited through the “disability determination process” through CAL. As of July 2017, the DC, the 50 states, and the U.S. territories are served by 119 DDS (Disability Determination Services) offices, according to SSA.
When a claimant files a claim for disability benefits, the claim is marked as CAL if the claimant uses specific “keywords or phrases” (related to a CAL condition) in the statement of their impairment.
Social Security flags claims affiliated with CAL for expedited processing using “cutting-edge technologies.” When assessing the “Supplemental Security Income” (SSI) and “Social Security Disability Insurance” (SSDI) programs, the Social Security Administration (SSA) uses the same guidelines to evaluate CAL conditions.
If the claimant misspells any “text, disease, or medical phrase” on the application, the software/technology may not raise a CAL flag. Further, DDS examiners are instructed by SSA directions to manually rectify the CAL flag if they observe that it has been “applied or omitted” improperly.
The SSA pays benefits to people who meet eligibility requirements under titles II and XVI of the “Social Security Act” (the Act) and who have medically verifiable “physical or mental” impairments severe enough to satisfy the Act’s definition of disability.
Disability guidelines can be highly complex, yet some people have serious enough “medical disorders” that clearly qualify them for SSA standards of disability. The SSA works to provide “compassionate public service” that guarantees the most severely disabled members of society receive benefits as soon as possible in order to meet their needs.
Via the SSA website or email at “compassionate.allowances@ssa.gov,” you can propose the name of a medical condition or illness for CAL consideration. Information about potential CAL conditions is received by SSA from a variety of sources, including “the public, the ‘Social Security and Disability Determination Service’ organizations, ‘medical and scientific’ experts, research with the National Institutes of Health (NIH), and information from previous public outreach discussions.”
CAL Conditions -
As of August 2024, the Social Security Administration’s “Compassionate Allowances” (CAL) initiative includes 278 conditions/problems. Since 2008, the SSA has increased the number of CAL diseases on its list from 50 to 278, as a result of which more people are becoming eligible for SSA’s “disability benefits.”
| Condition | Alternate Names |
|---|---|
| Chromosome 1p36 Deletion Syndrome | Deletion 1p36; Deletion 1pter; Del(1)(p36); Lethal 1p36.33 deletion syndrome; Monosomy 1p36; Monosomy 1pter; Monosomy 1p36 syndrome; Subtelomeric 1p36 deletion |
| Acute Leukemia | Acute Lymphoblastic (ALL); Lymphocytic Leukemia; Acute Myeloid Leukemia (AML) |
| Adrenal Cancer | Adrenal Carcinoma; Adrenocortical Cancer; Cancer of the Adrenal Cortex; Adrenocortical Carcinoma; Carcinoma of the Adrenal Cortex |
| Adult Non-Hodgkin Lymphoma (NHL) | Lymphoma - non-Hodgkin’s; Histiocytic lymphoma; Lymphoblastic lymphoma; Lymphocytic lymphoma; Cancer - non-Hodgkin’s lymphoma; DLBCL; Diffuse Large B-Cell Lymphoma |
| Huntington disease (HD) | Huntington’s chorea; Huntington chronic progressive hereditary chorea; Huntington chorea |
| Aicardi-Goutieres Syndrome (AGS) | Cree Encephalitis; Familial Infantile Encephalopathy with Intracranial Calcification and Chronic Cerebrospinal Fluid Lymphocytosis; Pseudotoxoplasmosis Syndrome; Encephalopathy with Basal Ganglia Calcification; Pseudo-TORCH Syndrome |
| Alexander disease (ALX) | Alexander Syndrome; Dysmyelogenic Leukodystrophy-Megalobar; Fribrinoid Degeneration of Astrocytes-Infantile type; Dysmyelogenic Leukodystrophy; Fibrinoid Leukodystrophy-Infantile type; Leukodystrophy with Rosenthal Fibers; Megalencephaly with Hyaline Inclusion; Hyaline Panneuropathy; Megalencephaly with Hyaline Panneuropathy; Alexander Disease Type I |
| Allan-Herndon-Dudley Syndrome (AHDS) | Allan-Herndon Syndrome; Monocarboxylate Transporter 8 Deficiency; MCT8 Deficiency; X-linked Intellectual Deficit with Hypotonia; MCT8 Specific Thyroid Hormone Cell Transporter Deficiency; MCT8 SLC16A2AHDS; T3 Resistence; Intellectual Disability and Muscular Atrophy; Triidothyronine Resistence; X-linked Intellectual Disability with Hypotonia |
| Alobar Holoprosencephaly (HPE) | Alobar HPE; Holoprosencephaly 1 Alobar; Familial Alobar Holoprosencephaly; Holoprosencephaly; Holoprosencephaly Sequence |
| Alpers disease | Alpers Syndrome; Progressive Sclerosing Poliodystrophy; Progressive Cerebral Poliodystrophy; Alpers Progressive Infantile Poliodystrophy; Diffuse Cerebral Sclerosis of Schilder |
| Alpha Mannosidosis | Alpha-D-Mannosidosis; Alpha-mannosidase Deficiency; Alpha Mannosidosis Types II/III Early Onset Forms; Alpha-Mannosidase B Deficiency; Lysosomal Alpha B Mannosidosis; Lysosomal Alpha-D-Mannosidase Deficiency; Alpha B Lysosomal |
| Amyotrophic Lateral Sclerosis/Parkinsonisim Dementia Complex (ALS/PDC) | ALS/PDC syndrome of Guam; Lytico-Bodig Motor Neuron Disease; Guam Disease; Kii ALS-PDC; PDALS; Parkinsonism Dementia-ALS complex |
| Alstrom syndrome | ALMS; Alstrom-Halgren Syndrome; ALMS1; Alstrom syndrome 1; Alstrom’s syndrome; AS; Alström syndrome |
| Alveolar Soft Part Sarcoma (ASP) | ASPS; ASP Sarcoma |
| Amegakaryocytic Thrombocytopenia | Inherited Bone Marrow Failure Syndrome; Congenital Amegakaryocytic Thrombocytopenia; IBMFS; CAMT; Acquired pure megakaryotic aplasia; AAT; Thrombocytopenia congenital amegakaryotic |
| Amyotrophic lateral sclerosis (ALS) | Aran-Duchenne; Lou Gehrig’s Disease; Motor Neuron Disease; Gehrig’s Disease |
| Anaplastic Adrenal Cancer | |
| Anaplastic Ependymoma | Anaplastic Ependymal Cancer; Anaplastic Ependymoma Cancer; Anaplastic Ependymoma Carcinoma; Anaplastic Ependymal Carcinoma; Anaplastic Tumor; Anaplastic Ependymal Tumor; Malignant Ependymoma; Anaplastic Ependymal Cancer |
| Angelman Syndrome (AS) | |
| Angioimmunoblastic T-Cell Lymphoma (AITL) | AILD; Angioimmunoblastic Lymphadenopathy with Dysproteinemia; Lymphogranulomatosis; Immunoblastic Lymphadenopathy |
| Angiosarcoma | Primary Angiosarcoma; Secondary Angiosarcoma |
| Aortic Atresia | Aortic Valve Stenosis; Aortic Valve Atresia |
| Aplastic Anemia (AA) | Acquired Aplastic Anemia; Bone Marrow Failure; Idiopathic Aplastic Anemia; Anemia Aplastic; Secondary Aplastic Anemia; Severe Aplastic Anemia |
| Astrocytoma | Anaplastic Astrocytoma; Anaplastic Malignant Astrocytoma; Astrocytoma Grade III; Astrocytoma Grade IV; Mixed Glioblastoma Sarcoma; Giant Cell Glioblastoma; Anaplastic Astrocytoma; Gliosarcoma Astrocytoma Grade IV; Anaplastic Oligoastrocytoma; Anaplastic Oligodendroglioma; Anaplastic Pleomorphic Xanthoastrocytoma |
| Ataxia Telangiectasia (AT) | Border-Sedgwick Syndrome; Cerebello-oculocutaneous Telangiectasia; Ataxia Telangiectasia syndrome; Louis-Bar Syndrome |
| Atypical Teratoid/Rhabdoid Tumor (AT/RT) | CNS AT/RT; Malignant AT/RT; Central Nervous System AT/RT; Childhood Atypical Teratoid / Rhabdoid Tumor; Childhood AT/RT |
| Batten Disease | Neuronal Ceroid Lipofuscinoses (NCL); Spielmeyer-Vogt-Sjogren-Batten disease; Haltia-Santavuori; Ceroid Neuronal Lipofuscinosis (CNL); Jansky-Beilschowsky |
| Beta Thalassemia Major (BT major) | Beta Thalassemia Major Syndrome; Cooley Anemia; Cooley Anemia Disease; Thalassemia Major; Cooley Anemia Syndrome; Microcythemia Major; Erythroblastic Anemia of Childhood; Mediterranean Anemia Major; Beta Zero Thalassemia |
| Bilateral Optic Atrophy (BOA) | Infantile Bilateral Optic Atrophy; Idiopathic Bilateral Optic Atrophy; Bilateral Optic Neuropathy; Congenital Optic Atrophy; Pediatric Bilateral Optic Atrophy |
| Bilateral Retinoblastoma | Malignant Neoplasm, Glioma Retinal; Rb; Retina; RB; Glioma, retinal |
| Bladder Cancer | Invasive Bladder Cancer; Invasive Bladder Carcinoma; Transitional Cell Carcinoma of the Bladder; Bladder Carcinoma; Squamous Cell Carcinoma of the Bladder; Squamous Cell Cancer of the Bladder; Urothelial Cancer; Adenocarcinoma of the Bladder; Urinary Cancer; Urinary Carcinoma |
| Blastic plasmacytoid dendritic cell neoplasm (BPDCN) | Lymphoblastoid variant of NK-cell lymphoma; Blastic NK-cell lymphoma; CD4+/CD56+ hematodermic neoplasm; Monomorphic NK-cell lymphoma |
| Breast Cancer | Metastatic Breast Carcinoma; Metastatic Breast Cancer; Breast Carcinoma (Stage IV); Ductal Carcinoma of the Breast (Stage IV); Metastatic Ductal Cancer; Lobular Carcinoma of the Breast Stage (IV); Metastatic Ductal Carcinoma; Metastatic Lobular Cancer |
| Childhood Ataxia with Central Nervous System Hypomyelination/Vanishing White Matter Disease (CACH-VWM) | Childhood ataxia with diffuse central nervous system hypomyelination; CACH Syndrome; Leukoencephalopathy with Vanishing White Matter Disease; Childhood Ataxia with Central Hypomyelination; Leukoencephalopathy with Vanishing White Matter Myelinosis Centralis Diffusa; Cree Leukodystrophy; Cree Leukoencephalopathy |
| Calciphylaxis | Calcific Uremic Arteriolopathy; Uremic Gangrene Syndrome |
| Canavan disease (CD) | Aminoacylase-2 (ACY2) deficiency; Canavan’s leukodystrophy; Spongy Degeneration of the Central Nervous System or Neuroaxis; Aspartoacylase (ASPA) deficiency; Van Bogaert-Bertrand syndrome; ACY2 deficiency; ASPA deficiency |
| Carcinoma of Unknown Primary Site (CUP) | Cancer of Unknown Primary Origin; Occult Primary Malignancy; Occult Primary Cancer; Origin of Unknown Primary Site; Malignant Neoplasms of Unknown site; Malignant Neoplasms of Unknown Origin |
| Cardiac Amyloidosis - AL type | Light Chain Cardiac Amyloidosis; Primary Cardiac Amyloidosis; Cardiac Amyloidosis Light Chain Disease |
| Caudal Regression Syndrome (CRS) | Caudal Dysplasia Sequence; Caudal Dysgenesis Syndrome; Sacral Regression; Sacral Agenesis; Caudal Regression Sequence; Lumbo Sacral Agenesis; Sacral Defect with Anterior Meningocele; Sacral Agenesis Syndrome; Sacral Regression Syndrome |
| CDKL5 Deficiency Disorder | CDKL V Deficiency Disorder; CDKL5 Encephalopathy; CDKL V Encephalopathy; CDKL Five Deficiency Disorder; CDKL Five Encephalopathy; CDKL5-Related Epilepsy; CDKL5-Related Epileptic Encephalopathy; CDKL Five Related Epileptic Encephalopathy; CDKL V Related Epilepsy; Early Infantile Epileptic Encephalopathy 2; Early Infantile Epileptic Encephalopathy II; Early Infantile Epilepsy Encephalopathy 2; Early Infantile Epileptic Encephalopathy Two; Early Infantile Epilepsy Encephalopathy Two; Early Infantile Epilepsy Encephalopathy II |
| Cerebro oculo facio skeletal (COFS) syndrome | Cockayne Syndrome-Classical Type I; Pena Shokeir Syndrome Type II; Cockayne Syndrome-Congenital Type II |
| Cerebrotendinous Xanthomatosis (CTX) | Xanthomatosis Cerebrotendinous; Cerebral Cholesterosis; Van Bogaert-Scherer-Epstein Disease; Cerebrotendinous Cholesterinosis; Cholestanol Storage Disease; Sterol 27-hydroxylase Deficiency; Cholestanolosis |
| Charlevoix-Saguenay Spastic Ataxia | Autosomal Recessive Spastic Ataxia of Charlevoix Saguenay; ARSACS; Spastic Ataxia of Charlevoix-Saguenay |
| Child Lymphoblastic Lymphoma | |
| Child Lymphoma | Childhood Non-Hodgkin Lymphoma; Diffuse Large B-cell Lymphoma; B-cell Lymphoma; Pediatric Non-Hodgkin Lymphoma; T-cell Lymphoma; Peripheral T-cell Lymphoma; Burkitt Lymphoma; Anaplastic Large Cell Lymphoma; Follicular Lymphoma; Hodgkin Lymphoma; Hodgkin Disease; Classical Hodgkin Lymphoma; Nodular Lyphocyte-Predominant Hodgkin Lymphoma; Pediatric Hodgkin Lymphoma |
| Child Neuroblastoma | Congenital Neuroblastoma; Stage IVS Neuroblastoma; Pepper’s syndrome; Sympathicoblastoma; Schwannian Stroma-Poor Neuroblastoma |
| Cholangiocarcinoma | Bile Duct Adenocarcinoma; Biliary Tract Cancer; cHCC-CC; Bile Duct Cancer; Combined HCC-CC; Combined Hepatocellular Cholangiocarcinoma; Distal Bile Duct Cancer; Distal Cholangiocarcinoma; Distal Extrahepatic Cholangiocarcinoma; Combined hepatocellular-cholangiocarcinoma; Extrahepatic Cholangiocarcinoma; Hepato Cholangiocarcinoma; Hepatocholangiocarcinoma; Hilar Cholangiocarcinoma; Intrahepatic Cholangiocarcinoma; Hilar Bile Duct Cancer; Perihilar Bile Duct Cancer; Perihilar Cholangiocarcinoma |
| Chondrosarcoma | Chondrosarcoma Grade III; Mesenchymal Chondrosarcoma; Dedifferentiated Chondrosarcoma |
| Choroid Plexus Carcinoma (CPC) | |
| Chronic Idiopathic Intestinal Pseudo Obstruction (CIIPO) | Chronic Intestinal Pseudo Obstruction; Congenital Idiopathic Intestinal Pseudo Obstruction; Intestinal Pseudo Obstruction; Primary Intestinal Pseudo Obstruction |
| Chronic Myelogenous Leukemia (CML) | Chronic Myeloid Leukemia (Blast /Accelerated phase); Chronic Granulocytic Leukemia (Blast Accelerated phase); CML (Blast/Accelerated phase) |
| CIC-rearranged sarcoma | CIC-DUX4 Rearranged Sarcoma; Small Round-Cell Sarcoma with CIC Rearrangement; CIC-DUX4 Sarcoma |
| Coffin-Lowry syndrome (CLS) | Coffin Syndrome; Coffin Lowry Disease |
| Congenital Lymphedema | Congenital Hereditary Lymphedema; Milroy Disease; Primary Lymphedema; Congenital Primary Lymphedema |
| Congenital Myotonic Dystrophy (type 1) | Steinert’s Disease; Myotonic dystrophy (type 1) |
| Congenital Zika syndrome (CZS) | Zika virus disease; ZVD |
| Cornelia de Lange Syndrome (CdLS) | Classic Form Cornelia de Lange Syndrome; BDLS; de Lange Syndrome; CDLS1, Brachmann-De Lange Syndrome; Amsterdam Dwarfism; Bushy Syndrome |
| Corticobasal Degeneration (CBD) | Cortical-Basal Ganglionic Degeneration; CBGD; Cortico-Basal Ganglionic Degeneration |
| Creutzfeldt-Jakob disease (CJD) | Jakob-Creutzfeldt Disease; Subacute Spongiform Encephalopathy; Jakobs Disease; Variant (V-CJD) Bovine Spongiform Encephalopathy (BSE); Prion disease |
| Cri du Chat syndrome | 5p- Syndrome; Le Jeune Syndrome; Chromosome 5p- Syndrome; Cat Cry Syndrome; 5p deletion syndrome; Monosomy 5p; 5p minus syndrome; CdCS; Chromosome 5p deletion syndrome |
| Degos disease | Degos-Kohlmeier Disease; Kohlmeier-Degos Disease; Malignant Atrophic Papulosis; Degos Syndrome; Kohlmeier disease; Papulosis Atrophican Maligna; MAP; Degos’s Malignant Atrophic Papulosis; Atrophic Papulosis, malignant |
| De Sanctis Cacchione Syndrome | Xeroderma Pigmentosum with Neurological Manifestation |
| Desmoplastic Mesothelioma (DMM) | Desmoplastic Malignant Mesothelioma |
| Desmoplastic small round cell tumor (DSRCT) | |
| Dravet syndrome (DS) | Severe Myoclonic Epilepsy Of/In Infancy; Epilepsy with Polymorphic Seizures; SMEI Syndrome; Polymorphic Epilepsy in Infancy; PMEI |
| Duchenne Muscular Dystrophy | Duchenne Syndrome; Dystrophinopathy, Duchenne Type |
| Condition | Alternate Names |
|---|---|
| Early-onset Alzheimer’s Disease (AD) | Presenile dementia; Young-onset Alzheimer’s disease; Presenile Alzheimer’s disease; Familial AD; FAD; EOAD |
| Edwards syndrome | Trisomy 18; Trisomy 18 Complete; Complete Trisomy 18 Syndrome; Chromosome 18; Trisomy E Syndrome |
| Eisenmenger syndrome | Eisenmenger Complex; Eisenmenger Reaction; Eisenmenger Physiology; Eisenmenger Disease; Cyanotic Heart Disease –Eisenmenger; Birth Defect heart – Eisenmenger; ES; Congenital heart defect – Eisenmenger |
| Endometrial Stromal Sarcoma (ESS) | Endometrial Stromal Sarcoma Grade III/IV; Undifferentiated Uterine Sarcoma; High Grade Endometrial Stromal Sarcoma; UUS |
| Endomyocardial Fibrosis (EMF) | Fibroelastic Endocarditis, Loeffler Endomyocardial Fibrosis with Eosinophilia; Davies Disease; Loeffler Fibroplastic Parietal Endocarditis; Loeffler’s Disease |
| Ependymoblastoma | Childhood Ependymoma; Neuroectodermal Tumors, Primitive; Ependymal Tumors; Embryonal Tumor with Multilayer Rosettes, C19MC-Altered; Embryonal Tumor with Multilayer Rosettes, Not Otherwise Specified (NOS); ETMR |
| Erdheim Chester Disease (ECD) | Erdheim Chester Syndrome; Non-Langerhans Cell Histiocytosis; Lipoid Granulomatosis; Polyostotic Sclerosing Histiocytosis |
| Esophageal Cancer | Adenocarcinoma of the Esophagus; Squamous cell carcinoma of the Esophagus |
| Esthesioneuroblastoma | Olfactory Neuroblastoma; Intracranial Olfactory Neuroblastoma; Recurrent Esthesioneuroblastoma; Skull Based Olfactory Neuroblastoma |
| Ewing Sarcoma | Ewing Tumor; Primitive Neuroectodermal Tumor; Askin Tumor; Ewing Sarcoma of Bone, Ewing Sarcoma of Soft Tissue; Askin’s Tumor; Diffuse Bone Endothelioma; Bone Endothelioma; Endothelial Sarcoma of Bone; Endothelial Myeloma; Extraosseous Ewing Sarcoma; Extraskeletal Ewing Sarcoma |
| Farber’s disease (FD) | Acid Ceramidase Deficiency; Farbers Syndrome; Disseminated Lipogranulomatosis; Farber lipogranulomatosis |
| Fatal Familial Insomnia (FFI) | |
| Fibrodysplasia Ossificans Progressiva (FOP) | Myositis Ossificans Progressiva; Progressive Ossifying Myositis; Munchmeyer Disease; Progressive Myositis Ossificans |
| Fibrolamellar Carcinoma (FL-HCC) | Fibrolamellar Hepatocellular Carcinoma; Eosinophilic Hepatocellular Cancer with Lamellar Fibrosis; Polygonal Cell Hepatocellular Carcinoma with Fibrous Stroma; Eosinophilic Hepatocellular Carcinoma with Lamellar Fibrosis; Polygonal Cell Hepatocellular Carcinoma with Fibrous Stroma; Polygonal Cell Hepatocellular Carcinoma with Fibrous Stroma; Polygonal Cell Hepatocellular Carcinoma with Fibrous Stroma; Polygonal Cell Hepatocellular Cancer with Fibrous Stroma; Hepatocellular Cancer with Increased Stromal Fibrosis; Eosinophilic Glassy Cell Hepatoma; Fibrolamellar Oncocytic Hepatoma; Hepatocellular Carcinoma with Increased Stromal Fibrosis; Fibrolamellar Variant of Hepatocellular Carcinoma; Fibrolamellar Variant of Hepatocellular Cancer |
| Follicular Dendritic Cell Sarcoma (FDCS) | Follicular Dendritic Cell Tumor; Dendritic Cell Sarcoma; FDCT/S |
| FOXG1 Syndrome | FOXG1-related Disorder; FOXG1-related epileptic-dyskinetic encephalopathy; FOXG1-related encephalopathy |
| Friedreich's Ataxia (FRDA) | Friedreich’s Disease; Friedreich’s Tabes; Hereditary Ataxia-Friedreich’s type; Hereditofamilial Spinal Ataxia; FA |
| Frontotemporal Dementia (FTD) | Frontotemporal Lobar Degeneration; Dementia with Lobar Atrophy and Neuronal Cytoplasmic Inclusions; Lobar Atrophy of the brain; Pick Disease of the brain-Type 1; Diffuse Degenerative Cerebral Disease; Wilhelmsen-Lynch Disease |
| Fryns Syndrome (FRNS) | Diaphragmatic Hernia, Abnormal Face, and Distal Limb Anomalies; CDH; Congenital Diaphragmatic Hernia |
| Fucosidosis Type I | Alpha-L-Fucosidase Deficiency; Fucosidosis Infantile Type; ALF; Fucosidosis Severe |
| Fukuyama Congenital Muscular Dystrophy (FCMD) | Cerebromuscular dystrophy, Fukuyama type; Fukuyama CMD; Fukuyama Syndrome; Fukuyama type congenital muscular dystrophy; Fukuyama muscular dystrophy; Muscular dystrophy congenital, Fukuyama type; Muscular dystrophy congenital progressive, with intellectual disability; Polymicrogyria with muscular dystrophy; Muscular dystrophy congenital, with central nervous system involvement |
| Giant Cell Myocarditis (GCM) | Fulminant GCM; Fulminant Non-ischemic Dilated Cardiomyopathy; Fulminant Myocarditis |
| Galactosialidosis | Protective Protein/Cathepsin A Deficiency; Cathepsin A Deficiency of GSL; Deficiency of Cathepsin A; PPCA deficiency; Lysosomal Protein Deficiency; Goldberg Syndrome; Neuraminidase with Beta galactosidase deficiency |
| Gallbladder cancer | Gallbladder Adenocarcinoma; Gallbladder Carcinoma |
| Gaucher Disease (GD) | Gaucher Disease-Type 2; Gaucher Disease, Acute Neuronopathic Type; GD2; Gaucher Disease, Infantile Cerebral; Disease-Type 2; Gaucher Syndrome Type 2; Gaucher Disease, Acute Neuronopathic Type |
| Gerstmann-Straussler-Scheinker Disease (GSS) | Amyloidosis Cerebral with Spongiform Encephalopathy; Cerebellar Ataxia Progressive Dementia and Amyloid Deposits in the CNS; Cerebellar Ataxia Progressive Dementia and Amyloid Deposits in the Central Nervous System; Gerstmann Straussler Scheinker Syndrome; Subacute Spongiform Encephalopathy, Gerstmann Straussler Type |
| Giant Axonal Neuropathy (GAN) | |
| Glioblastoma Multiforme | Glioblastoma; GBM; Grade IV astrocytoma; Glioblastoma Adult Brain Tumor; Diffuse Midline Glioma; H3K27M-Mutant; Giant Cell Glioblastoma; Gliosarcoma, IDH Wildtype; Glioblastoma, IDH Wildtype; Gliosarcoma; Glioblastoma, IDH Mutant; Glioblastoma, NOS |
| Glioma | High Grade Malignant Glioma; Malignant Glioma Grade IV; Glioblastoma; Malignant Glioma Grade III; Anaplastic Astrocytoma; Undifferentiated Glioma; Anaplastic Oligodendroglioma; Anaplastic Oligoastrocytoma; Anaplastic Glioma; Giant Cell Glioblastoma; Gliosarcoma; Epithelioid Glioblastoma; Diffuse Midline Glioma |
| Glutaric Acidemia - Type II | Electron transfer flavoprotein deficiency; ETFA deficiency; ETFB deficiency; EMA; ETFDH deficiency; Ethylmalonic-adipicaciduria; Glutaric acidemia, type 2; MAD; GA II; MADD; Multiple acyl-CoA dehydrogenase deficiency; Glutaric aciduria; Multiple FAD dehydrogenase deficiency |
| GM1 gangliosidosis | GM1 gangliosidosis type I; beta-galactosidase-1 (GLB1) deficiency; GLB1 deficiency; GM1 gangliosidosis type II; Landing disease; type 1 GM1 gangliosidosis; Beta-galactosidosis; Classic infantile (type 1) GM1 gangliosidosis; type 2 GM1 gangliosidosis; Juvenile (type 2) GM1 gangliosidosis |
| Head and Neck Cancers | Adenocarcinoma/“Squamous Cell Carcinoma” of the nasal cavity, lips, mouth, sinuses, nose, tongue, throat, tonsils, or larynx (voice box); Squamous Cell Cancer of the nasal cavity, lips, mouth, sinuses, nose, tongue, throat, tonsils, or larynx (voice box); Metastatic Squamous Cell Neck Cancer; Head and Neck Carcinomas; Metastatic Squamous Cell Neck Carcinoma; Small Cell or Oat Cell Carcinoma |
| Heart Transplant Graft Failure | Graft Rejection; Organ Rejection; Primary Graft Dysfunction; Tissue Rejection; Cardiac Allograft Vasculopathy |
| Hemophagocytic Lymphohistiocytosis - Familial Type (FHLH) | Erythrophagocytic Lymphohistiocytosis; Familial Hemophagocytic Lymphohistiocytosis; Familial Histiocytic Retulosis; Familial Erythrophagocytic Lymphohistiocytosis; Familial Hemophagocytic Lymphohistiocytosis; FHLH types 1, 2, 3, 4 and 5; HPLH; FHL; HLH |
| Hepatoblastoma (HB) | Pediatric Embryonal Hepatoma; Liver Cancer – children; Pediatric Hepatoblastoma; HBL |
| Hepatocellular Carcinoma (HCC) | Adult HCC; Hepatocellular Cancer; Hepatoma; Adult Hepatocellular Carcinoma; Liver Cancer |
| Hepatopulmonary syndrome (HPS) | Hepatopulmonary Syndrome Type I/II; Hepato Pulmonary Syndrome |
| Hepatorenal Syndrome (HRS) | Hepato Renal Syndrome; Hepatorenal Syndrome Type I/II |
| Histiocytosis | Hand-Schuller-Christian disease; Histiocytosis X; Langerhans Cell Histiocytosis; Hemophagocytic Syndrome; Letterer-Siwe disease; LCH; Non-Langerhans Cell Histiocytosis; Nonlipid Reticuloendotheliosis; Pulmonary Histiocytosis X; Malignant Histiocytosis syndrome T-cell Lymphoma; Pulmonary Langerhans Cell Granulomatosis; Sinus Histiocytosis with Massive Lymphadenopathy; Rosai-Dorfman Disease |
| Hoyeraal-Hreidarsson Syndrome (HHS) | Hoyeraal-Hreidarsson Disease; Progressive Pancytopenia Immunodeficiency Cerebellar Hypoplasia; Cerebellar Hypoplasia with Pancytopenia |
| Hutchinson-Gilford Progeria Syndrome (HGPS) | Hutchinson-Gilford Syndrome; Progeria of Childhood; Progeria Syndrome |
| Hydranencephaly | |
| Hypocomplementemic Urticarial Vasculitis Syndrome (HUVS) | McDuffie Syndrome; Hypocomplementemic Vasculitis |
| Hypophosphatasia | Alkaline Phosphotase Deficiency; Hypophosphatasia Perinatal Lethal Form; Perinatal Rathburn Disease; Perinatal Lethal Hypophosphatasia; Hypophosphatasia Lethal Form; Hypophosphatasia Infantile Onset; Phosphoethanolaminuria; Rathburn’s Disease |
| Hypoplastic Left Heart Syndrome (HLHS) | Aortic and Mitral Atresia with Hypoplastic Left Heart Syndrome; Cyanotic Heart Disease – Hypoplastic Left Heart; Congenital Heart – Hypoplastic Left Heart |
| I Cell Disease | Mucolipidosis Type II; Inclusion Cell disease; Mucolipidosis II Alpha/Beta; MLType II; ML II; Mucolipidosis 2; GNPTA; Leroy Disease; N-acetylglucosamine 1 phosphotransferase deficiency; ML 2; ML disorder type 2; Inclusion Cell Syndrome; Inclusion Cell Disease; I Cell Syndrome |
| Idiopathic Pulmonary Fibrosis (IPF) | Idiopathic Diffuse Interstitial Pulmonary Fibrosis; Cryptogenic Fibrosing Alveolitis; CFA; Pulmonary Fibrosis; Fibrosing Alveolitis; Usual Interstitial Pneumonitis; UIP; Familial Idiopathic Pulmonary Fibrosis (FIPF); Diffuse Fibrosing Alveolitis |
| Infantile Free Sialic Storage Disease (ISSD) | Sialuria Infantile Form; Infantile Sialic Acid Storage Disorder; N-acetylneuraminic acid storage disease; NANA Storage Disease; Sialuria Finnish Type; Free Sialic Acid Storage Disease |
| Infantile Neuroaxonal Dystrophy (INAD) | Seitelberger Disease; Prenatal or Connatal Neuroaxonal Dystrophy |
| Infantile Neuronal Ceroid Lipofuscinoses (INCL) | Haltia-Santavuori disease; NCL; Finnish form of NCL; CNL1; Santavuori-Haltia disease |
| Inflammatory Breast Cancer (IBC) | Inflammatory Breast Carcinoma |
| Intracranial Hemangiopericytoma (HPC) | Primary Intracranial Hemangiopericytoma; Multifocal Intracranial Hemangiopericytoma; Solitary Fibrous Tumor; Infantile Intracranial Hemangiopericytoma; Mesenchymal Tumor; Non-Meningothelial Tumor; SFT |
| Jervell and Lange-Nielsen Syndrome (JLNS) | Jervell Lange Syndrome; Nielsen Syndrome; Cardio Auditory Syncope Syndrome; Jervell Nielsen Disease; LQTS; Cardioauditory Syndrome of Jervell and Lange-Nielsen; Surdo Cardiac Syndrome; Long QT Syndrome |
| Joubert Syndrome (JS) | Agenesis of Cerebellar Vermis; Cerebellooculorenal Syndrome 1; Cerebelloparenchymal Disorder 4; Cerebello-Oculo-Renal Syndrome; Joubert-Bolthauser Syndrome; Joubert Syndrome and Related Disorders; Pure Joubert Syndrome; Classic Joubert Syndrome; Joubert Syndrome Type A |
| Junctional Epidermolysis Bullosa (JEB) - Lethal type | Dystrophic Epidermolysis Bullosa; Epidermolysis Bullosa, Junctional; Hemidesmosomal Epidermolysis Bullosa; Epidermolysis Bullosa Atrophicans; Herlitz Disease; Herlitz Junctional Epidermyolysis Bullosa; Junctional Epidermolysis Bullosa Gravis; Lethal Junctional Epidermolysis Bullosa; JEB-Herlitz |
| Juvenile Onset Huntington Disease (JHD) | Juvenile Huntington Disease; Juvenile HD; Early-Onset HD; Huntington Disease Juvenile Onset; Juvenile Onset HD; Juvenile Huntington Chorea |
| Kidney Cancer | Kidney Carcinoma; RCC; Renal Cell Carcinoma; Wilms Tumor; Renal Cell Cancer; Renal Pelvis Carcinoma; Renal Adenocarcinoma; Rhabdoid Tumor of the Kidney; Neuroepithelial Tumor of the Kidney; Clear Cell Sarcoma of the Kidney; Diffuse Hyperplastic Perilobar Nephroblastomatosis; Transitional Cell Carcinoma; Hypernephroma; Urothelial Carcinoma |
| Kleefstra syndrome | 9q34 Deletion Syndrome; 9q34.3 Microdeletion Syndrome; 9q Subtelomeric Deletion Syndrome; Chromosome 9q34.3 Deletion Syndrome; 9q34.3 Terminal Deletion Syndrome; 9qSTDS |
| Krabbe disease (KD) | Beta Galactocerebrosidase (GALC) Deficiency; Galactosylceramide Lipidosis; Globoid Cell Leukodystrophy (GLD); Galactosylceramide Deficiency; Krabbe Leukodystrophy; Sphingolipidoses, Krabbe type |
| Kufs disease | Adult Neuronal Ceroid Lipofuscinosis; Adult NCL; NCL Type 4; NCL4; Adult Onset Neural Ceroid Lipofuscinosis; CLN4A Disease; CLN4B Disease; Kufs Type Neuronal Ceroid Lipofuscinosis |
| Large Intestine Cancer | Colon Cancer; Colorectal Cancer; Colorectal Carcinoma; Colon Carcinoma; Rectal Cancer; Rectal Carcinoma; Large Bowel Cancer; Large Intestine Adenocarcinoma; Large Bowel Carcinoma; Colon Adenocarcinoma |
| Late Infantile Neuronal Ceroid Lipofuscinoses (LINCL) | Jansky-Bielchowsky disease; NCL2 |
| Leber Congenital Amaurosis (LCA) | Amaurosis Congenita of Leber; Congenital Retinal Blindness; Leber’s Amaurosis; Congenital Absence of Rods and Cones; Leber’s Congenital Tapetoretinal Degeneration; Leber’s Congenital Tapetoretinal Dysplasia |
| Leigh’s disease | Leigh Necrotizing Encephalopathy; Necrotizing Encephalomyelopathy of Leigh’s; SNE; Leigh’s Syndrome; Subacute Necrotizing Encephalopathy; Infantile Subacute Necrotizing Encephalopathy; Leigh Syndrome; Leigh Disease; Subacute Necrotizing Encephalomyelopathy; Juvenile Subacute Necrotizing Encephalopathy |
| Leiomyosarcoma (LMS) | Leiomyosarcoma of the Uterus; Leiomyosarcoma of the Bone; Leiomyosarcoma of the Retroperitoneum; Leiomyosarcoma of Vascular Origin; Leiomyosarcoma Stage IV; High Grade Leiomyosarcoma; Leiomyosarcoma Stage III |
| Leptomeningeal Carcinomatosis (LC) | Leptomeningeal Cancer; Carcinomatous Meningitis; Leptomeningeal Metastasis; Neoplastic Meningitis; Leptomeningeal Carcinoma; Meningeal Metastasis |
| Lesch-Nyhan syndrome (LNS) | Hereditary Hyperuricemia and Choreoathetosis Syndrome; Hyperuricemia-Oligophrenia; Hypoxanthine-Guanine Phosphoribosyltranferase Deficiency (HGPRT); Hyperuricemia Choreoathetosis-Self mutilation Syndrome; Hypoxanthine phosphoribosyltransferase Deficiency (HPRT); Lesch Nyhan Disease; Nylan Syndrome; Juvenile Gout-Choreoathetosis and Intellectual Disability Syndrome |
| Lewy Body Dementia (LBD) | Lewy Body Disease; Dementia with Lewy Bodies; Autosomal Dominant Diffuse Lewy Body Disease; Diffuse Lewy Body Disease; Cortical Lewy Body Dementia; Lewy Body Variant of Alzheimer Disease; Senile Dementia of Lewy Type; Parkinson Disease with Dementia |
| Liposarcoma | Dedifferentiated Liposarcoma; Inflammatory Liposarcoma; Spindle Cell Liposarcoma; Myxoid Liposarcoma; Pleomorphic Liposarcoma |
| Lissencephaly | Lissencephaly Type I; LIS1; X-Linked Lissencephaly; XLIS; Classical Lissencephaly; Lissencephaly with Agenesis of the Corpus Callosum; Lissencephaly with Cerebellar Hypoplasia; Miller-Dieker Syndrome; Microlissencephaly |
| Lowe Syndrome (LS) | Cerebro-oculo-renal Syndrome; Lowe Oculocerebrorenal Syndrome; Lowe’s Disease; Oculocerebrorenal Dystrophy; Cerebro-oculo-renal Dystrophy; OCRL; Oculocerebrorenal Syndrome; OCR; Phosphatidylinositol-4,5 Bisphospate-5-Phosphatase Deficiency; Cerebrooculorenal syndrome; Lowe’s oculocerebrorenal disease/syndrome; Oculo-cerebrorenal Syndrome of Lowe; Oculocerebrorenal Syndrome |
| Lymphomatoid Granulomatosis (LG) | Lymphomatoid Granulomatosis High Grade; Lymph Angiitis and Granulomatosis; Malignant Lymph Angiitis and Granulomatosis; Polymorphic Reticulosis; Lymphoproliferative Disease; LG High Grade; Pulmonary Angiitis |
*conditions/diseases in above tables are as of August 2024.
**above tables only includes diseases/conditions that start with the letters “A through L.” Go to “ssa.gov/compassionateallowances/conditions.htm” for the most recent information regarding all conditions.
The official website of SSA’s “Compassionate Allowances”: https://www.ssa.gov/compassionateallowances/
That’s all friends.
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